I got this from Pam Mayo-Roman on Facebook..
Calling all families, friends and running enthusiasts! It's time to run, have fun and celebrate with us the birthdays of Julia and Vince through a FUN RUN called RARE RUN ala EH! on Dec 18, 2010.This is a special event that aims to raise funds for the benefit of kids with rare disorders like Vince and Julia. Proceeds will go to the Philippine Society for Orphan Disorders, Inc (PSOD) and Breathe Initiative (BI)