What do you want?

i want to hear (the noise of the world). i want to move my left arm and hand. i want to write. (i'm a lefty) i want to draw. i want to paint. i want to stand alone without falling. i want to walk. i want to jump. i want to run. ("run, jump, play, make noise but do not sin"-don bosco haha!) i want to see the world clearly. i want to move my facial muscles. (i want to cry? nah.. ) i just want tears. (my eyes are very dry and i need an eye drop for it to moist) i want to close my eyes properly. i want to smile. i want to feel hot/cold water when poured to my left part of the body. i want my tumors to stop growing. i want to get better.

Give me a gift on my birthday!

my birthday's coming on MAY 13! woohoo!

the cochlear implant is on my wishlist for christmas.. and i got it! yey!

so now, i'll make another wishlist for my birthday..

relax, it not to luxurious.. here it is:
- tissue
- cotton
- alcohol
- soap
- diapers
- and other toiletries that are used during hospitalizations..
- NEW toys

I'll be able to hear on my birthday..

CLICK. READ. BE HAPPY.

my mom woke me up this morning because of a super great news.. at first i was kinda pissed because she woke me up in the middle of a dream and i can't understand what she's saying.. eh syempre naalimpungatan.. she mentioned: dra. chiong, april7, schedule, etc. until i got it.. a bit.. i just saih: "ahh.." then i closed my eyes again and thought of what i just read from my mom's mouth (if i'm not deaf, the word is as simple as HEARD. haha).. this time it really really registered in my mind, then i blurted out: "MAKAKARINIG NA KO SA BIRTHDAY KO" yes! yes! yes! ang galing lang.. when i knew that i'll still be deaf on my birthday, i prayed and wished and hope that it's the other way around (i'll be able to hear on my birthday.. paulit-ulit naman!).. though it's ok with me if not.. what's important is i'm going to hear again.. this summer.. woohoo! i was super duper over happy about it.. then in the afternoon, we went to med-el office in alabang to finalize everything with ms. maribel and get the documents for pcso, pagcor, etc. ANG SAYA-SAYA! sabi ko nga: "i can't smile, but i'm happy".. happy happy joy joy talaga!

here's dra. chiong's text message to me last christmas (share ko lang..ang saya eh):

I wish you more blessings for the coming year and here's to thank you for the simple joy of knowing a person like you. I am praying that we can make your dream of hearing again come true soon with God's help.

-Dr. Charlotte Chiong

Letter of my mom for my surgery on march 10

this is the updated version of this..

I am writing in behalf of my 24-year old daughter Maria Kathrina Yarza (Kcat).Almost four years have past after Kcat was diagnosed with Neurofibromatosis Type 2 (NF2)a very rare genetic disease. Neurofibromatosis Type II) is an inherited disease. The main manifestation of the disease is the development of symmetric, non-malignant brain tumours in the region of the cranial nerve VIII, which is the auditory-vestibular nerve that transmits sensory information from the inner ear to the brain. Most people with this condition also experience problems in their eyes. NF II is caused by mutations of the "Merlin" gene which probably influences the form and movement of cells. The principal treatments consist of neurosurgical removal of the tumors and surgical treatment of the eye lesions. There is no therapy for the underlying disorder of cell function caused by the genetic mutation.

WISH LIST

wish. wish. wish. wish list here, there, and everywhere.. i never really had a wish list that i'm really eager to have.. maybe just a food i'm craving for, or a simple thing that i like.. not really a BIG wish list.. until i've read about ABI...

ABI isn't a name of a person, it's Auditory Brainstem Implant..
ayun!

btw, here's the story..