Neurofibromatosis is a neurological disorder and causes benign tumors to grow on nerves that can affect the brain, spinal cord, nerves and skin. It can be inherited or it can happen because of a mutation in genes. And once you have it, you can pass it along to your children.
People with Neurofibromatosis Type 1 (NF1) develop varying numbers of bumps and spots that grow along the nerves or underneath the skin.
Neurofibromatosis Type 2 (NF2) is a rare type of NF in wherein multiple tumors grow on the cranial and spinal cord.
NF1 occurs in approximately 1 in 3,000 births while NF2 occurs less frequently in 1 out of 25,000 births worldwide and can be present among all racial groups and affect both sexes equally.
Schwannomatosis is a very rare form of NF that has only been recently diagnosed and appears to affect 1 in 40,000 individuals.
Even though treatments can be done to control the symptoms of NF like surgery to remove the tumors, radiation therapy and medicines – there is no known cure for it yet, but we can still fight, thrive, live with it and not let it get the best of us.
Let us help each other by sharing our experiences and exchanging information about Neurofibromatosis and spread awareness about NF.
Neurofibromatosis is not contagious.
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