Rest well Vincent

We visited Vincent this noon, after my CI mapping at PGH.. He was with his cousins Jea & Phoebe.. He was sleeping.. Resting.. But that's OK, he really needs to rest because he'll get better soon.. :)


More pictures of my mapping etc here.

Cure 4 Zofia

Grabeh! There are lots of sick kids.. I saw this at causes apps in Facebook, Then I clicked her multiply site..

Zofia is 21/2 years old, she was born on the Christmas of 2006.. She was diagnosed with HISTIOCYOSIS - rare blood disease that is caused by an excess of white blood cells called histiocytes.


They are currently raising funds and selling shirts.. Check out their site. Help & Pray. :D

Look who I saw..

First Wednesday of the month eh.. Of course we went to Megamall chapel and attended Fr. Joey's healing mass.. Then we saw Kuya Sandi..

may mumu.. hehe.

Huwag tayong mangamba

This video made by Kuya Sandi for all of us.. Thanks! Thanks!

Huwag Kang Mangamba
(lyrics)

Chorus:
Huwag kang mangamba.
Di ka nagiisa.
Sasamahan kita.
Saan man magpunta.
Ika'y mahalaga.
Sa aking mga mata.
Minamahal kita.
Minamahal kita.

Tinawag kita sa iyong pangalan.
Ikaw ay Akin magpakailanman.
Ako ang Panginoon mo at Diyos.
Tagapagligtas mo at tagatubos.

(repeat chorus)

Sa tubig kita sasagipin.
Sa apoy ililigtas man din.
Ako ang Panginoon mo at Diyos.
Tagapagligtas mo at tagatubos.

(repeat chorus)

O sabi ni Kuya Sandi, Wag tayong mangamba ah..

[...]Kaya, Gumawa po ako ng isang video na inahahandog ko po para sa inyong lahat na aking mga kaibigan, sa tunay na mundo, sa blogosperyo…. at sa aking mga espesyal na mga kaibigang may karamdaman at sa kanilang pamilya, sa mga batang kalye, sa mga dukha ng mga dukha, sa iba pa.[...]

Vincent CANCER-vive!

Whenever someone adds me on Multiply or what ever social networking I joined (except Facebook - strictly for friends only.. strictly talaga.. haha.), I just visit the homepage and confirm it.. Then I just browse around their site whenever I receive an email of their site-update..

Then I saw this:

I immediately clicked on the link to his site.. Then my heart ached. *ouch* my brain hurts pala.. Hehe.

I clicked everything on the site to get all the information regarding Vincent..

Vincent was a normal healthy 7-year-old boy until.. he was diagnosed with MEDULLOBLASTOMA : Medulloblastoma is a malignant brain tumor of childhood that arises in the cerebellum, located in the back, lower part of the brain. These tumors account for about 20% of childhood brain tumors and most often occur in the first 10 years; half occur in children younger than 6 years old. It can spread to outside the brain and spinal cord, although this is uncommon. While it is not clear what causes medulloblastoma, it seems that abnormal malignant cells begin to grow, rapidly divide and grow out of control leading to a tumor in the early years of a child’s life. [more]


Please visit Vincent's site and Pray for him.. Prayers move mountains, right?

This was her cousin's appeal on the site she made for Vincent:

hello everyone! according to the doctors my cousin needs a series of CHEMOTHERAPY and RADIATION THERAPY which is estimated to last for 1 year or more depending on the reaction of his immune system to the treatment. We are asking for your help in whatever way that you can extend to us in helping us cope with these trying times we are currently facing. Thank you so much and God Bless everyone!

-Phoebe

Let's PRAY. PRAY. PRAY. it's not that hard.. and please spread the word and share his site to your friends.. :)

NF-NF-F

I got a NEW FOUND-NEUROFIBROMATOSIS-FRIEND :)


She is Cheska Alterman, 13 years old. She was diagnosed with NF1 5 months ago.. We me her and her mom, Tita Barbara at POC (Phil Orthopedic Center) last Monday. She is on a wheelchair right now because she recently had a nuerofibroma (tumor) operation underneath her thigh and she's having her rehab (PT) at POC..

When Tita Barbara saw us passed by them on the waiting area, she approached us and asked if we're the ones in Probe. She was so happy because she really wants to meet someone with the same sickness as her daughter.. She even hugged me & my mom..

I also have another NF-NF-F from Cebu.. She emailed me with her video showing her NF lumps.. She said it's been so long since she was searching for a friend with the same condition as her.. She wants to vent out the things she can't say to her family.. I said, I'll listen (though not literally.. haha). :)

I really want to push through with the NF Support Group.. Sana. Sana. Lord, please. ;)

I cried 3 drops of tears..

This is how my computer screen looks like every 10:30-11pm for 4 (?) weeks.. 1 Liter of Tears is being aired on GMA.. It's tagalog dubbed but I can't hear it so I still need subtitles..

I watched it 3 (or 4) times already, and I always cry 3 drops of tears.. Haha.

I CRIED 3 DROPS OF TEARS

Here are my screen caps of the series w/ my side commentaries.. Hehe. So that I won't blog it one by one.. :D I just felt like doing it.. Trip lang.. ;P

"Kumakalam na tiyan, hadlang sa Kaalaman"

I got this from Armin..

" Kumakalam na tiyan, hadlang sa Kaalaman " (a little help)

“I know that death is for real but its different when its starting at you and any moment he can just snatch you. Immediately, I realized that I was not prepared. I was not a bad person but I was not facing up to my moral obligation to my fellowmen…”
(Violy, a native of Benguet)






“If I share my story, maybe someone with the capacity to do something will read this and follow suit…. If they can only do something like this for one person and save one soul….”
(Aida, a native of Mountain Province)

“Wheel to our hearts is our Wheel to Progress”

[...]We believe that it is best – to put our resource, time and energy to worth wile causes. We know that there are other pressing problems as well, after 17 years we are continuing our mission and mom’s dream inspite and despite of lack of resources and financial assistance. But it has to be done, and the undeserved kids have to be served. Moreover, we should not be bothered with obstacles. We should not stop. In Fact, we believe we are just beginning the long journey towards attaining the goals and YOU CAN BE PART OF IT.

We believe that an effective education will be achieved only when the students have the necessary resources to achieve their goals. Included in these basic resources for learning is a healthy mind that is adequately nourished.

However, despite this basic premise of adequate nourishment to learn, most of our students are deprived from getting sufficient food. Coming from impoverished families, the students are malnourished giving them another impediment to learn despite their willingness to obtain an education. These circumstances have prompted us to embark on a feeding program ("Kumakalam na tiyan, hadlang sa Kaalaman ") that would allow them to learn effectively. We are hoping that you or your organization/corporation/institution would be able to give us assistance to augment our meager resources.

Our target students in this alternative learning system are the disadvantaged children from poor families. Our school provides these services for free and are based on the standards set by the Department of Education.

My Name is Alexander Cinco, 13 years old, I live with my grand parents together with my other two siblings. I was very young when our parents got separated. Since then, we never saw our father, but our mother is visiting us sometimes. It was tough for everyone, specially for me and older brother because when we were growing up, our father was the one providing us with all our needs, as with to our youngest brother it didn’t effect him that much, since he was just a baby when our parents left us. Our Grand Parents are old, they took the responsibility of taking care of us and in spite of their condition, they were able to send us to school from kinder to grade 3. But due to financial incapacity we were obliged to stop from studying and help them raise money for our daily needs. I sell scapulars and I also learned to beg for alms on the street. If I’m lucky, I get to buy a meal for every body but that rarely happens.
Ambition: To finish highschool

I am Monica Dela Cruz, 7 years old. Living with my Lola whose working as a “Manghihilot” this is where we get our means of living and its not enough. So most of the time in a middle of school year we always stop due to lack of money. We don’t eat breakfast before going to school and we walk back and forth from our house to school, even though is hard because of our financial status how I wish that I can finish my studies and pursue my dream.
Ambition: To be a singer

We are therefore appealing to your good side and good heart to assist us in implementing this feeding program "Kumakalam na tiyan, hadlang sa Kaalaman". Whatever contribution (cash or in kind) you could impart to our school would go a long way in alleviating the plight of these disadvantaged learners. We deeply appreciate your help in any way.

Thank you
Violy Sapalit & Aida Guesdan

just contact us if you want to donate..
09065048511 / 6973382
Aristocrat Building
Hinulugang Taktak, National Park
Daang Bakal St., Antipolo Rizal


---
read the full blog entry here.
Please pass, spread the word & help.. :) thanks!

SHE DID

Just finished watching the movie version of 1 Litre of Tears.


Because it's a movie, the pacing is fast.. And there aren’t as much tear-jerking scenes as the drama series.. But it's still a tear-jerker.. I prefer the series pa rin.. Ayun, I watch it over and over.. Hehe.


*another blog entry about 1 litre of tears? na-adik na.. ;P

I don't want a time machine

This episode of 1 Liter of Tears was aired today on GMA.. I was really waiting for this episode when she wanted to make a time machine, because I want to blog something related to it.. ^__^

While I was watching that part when Aya said she wanted a time machine.. I asked myself if did I ever wanted a time machine too? Actually, I haven't really thought about that.. That was the first time. And my answer is NO. Let's say there's really a time machine, of course a lot of people would want to get in there and go back to the past to correct the mistakes they have done, to make life better. To do the 'what ifs' & 'shoulda woulda coulda'. As for me, I'll just walk close to it and look and like what I told Mr. Cruz when he asked me that 'time machine question', I'll just pose & take a picture with it.. Haha! I'll also say goodbye and wish the passengers good luck.. Hehe.


If I'll go back to the past & change it, TODAY won't be the same.. I might not be able to meet the people I know today. I might, but I might not.. I'll be sick no matter what because NF2 is in my genes.. And I might now accept and deal with it like I'm living with it today.. Will I be still this strong? Today is TODAY because of the past..

Mr. Cruz also asked me: 'How about if the time machine can go to the future instead?' I still won't ride on it. If I'll go to the future, I won't be able to cherish the present.. ;)

So instead of time machine, I prefer a watch.. Haha.

A purple watch.. Hehe.

Anyway, she said (in her diary): "I want to make a time machine and go back in time. If it wasn't for this disease, not only could I enjoy falling in love but I also wouldn't have to rely on anyone and to live by myself" She didn't really say that she'll change the past, she just wants to revisit it and wishes she didn't have SCD (Spinocerebellar Degeneration).. Because her time seem to be limited.. It's limited..


Aya wants a time machine, not to change the past but to cherish it.. There's no time machine. But with her condition, she keeps on living on with life, with time. So we shouldn't really complain.. Instead, live life, keep up with time.. Umm.. wear a watch! Haha!



"I really don't want to say things such as "I want to go back to how things were before". I recognize how i am right now, and I will continue to live on."
-Kitou Aya




eto pa..

"Everything has a reason. Life must go on."
-Kcat Yarza
wahahaha! yun yon eh! ;P