Saturday, May 13, 2017

Wanna know my birthday wish?


“Most of us consider our birthdays as a significant and meaningful event in our lives. We celebrate it in different ways, but what is important is that we have to be thankful because it is the day that we had been given our precious life here on earth. We have to live through the days, months, and years in spite and despite all the events in our lives.

Having another birthday means a new day is waiting for us to experience life. We may be a year older, but we definitely grow wiser and stronger.”

(28 years – May 23, 2011)

And today is my 34th year of being THANKFUL! So thankful.

I am SO HAPPY and VERY GRATEFUL that I have been living a wonderful life for 34 years now. 

Thank you. Thank you. Thank you. Thank you, mother. Thank you, father. Thank you, sister. Thank you, brother. Thank you, family. Thank you, friends.  Thank you neighbors. Thank you, supporters. Thank you, strangers. Thank you, doctors. Thank you to everyone who became a part of my life at the same time, thank you for making me a part of your lives. Thank you, you, you, you and everyone. Again, thank you, MOMMY. And most importantly, thank you Lord God, our Heavenly Father that I am able to say “THANK YOU” with full of meaning.

Words aren’t really enough to describe how grateful I am feeling.

There are lots and lots and lots of reasons why I am so thankful and I want to share with you the most recent reason that I am thankful for…

Ever since I can’t remember, I would always have a very painful headache every summer. But who doesn’t experience headache during a hot weather anyway. It became worse after my brain tumors showed up and I was diagnosed with NF2.  The pain in my head became severe, and my head easily gets really hot. I’m a hot-headed person. Literally. Haha. My head can get so hot, inside and outside and can even be felt from an inch away. You can feel the hot pressure around it when you touch my head. 2 fans with air conditioner is not enough at times. Plus my head would always feel like it’s so heavy and it’s would suddenly get stiff and I have a hard time moving it for a while whenever I feel so hot and thirsty. It’s like having a leg cramps on the head. Ouch.  That goes on summer after summer (March to May and on a hot weather). The aggressive brain tumors showed up when I was diagnosed with NF2 in August 2004, so it’s been 12 years more or less and sadly I already got used to it now. But on the brighter-side, because I am already used to it, I already know what do to minimize the pain. I can’t really stop it from happening but I have found out a way to lessen it and it’s called: PREVENTION IS BETTER HAN CURE. Yes, everyone about knows it but unfortunately, not everyone is applying it in their lives. Sad truth. Oh well.

Fast-forward to summer 2017, the very painful headache, the heavy head and the very hot head that I was expecting didn’t come and it’s already the month of May and nothing still. WOW. It’s so amazing! Of course I can also feel the very hot weather this season but it really is different. My head is still hot but it’s not the usual “super hot-headed” anymore and 1 fan that’s facing me and my head is already enough. Headache is not totally gone. I still get headache from time to time. Total of  5 times this year started. On a scale of 1 to 10, 10 being the most painful headache I’ve experienced. Amazingly, the most painful now is 3 or 4. It’s not really that painful, it’s just irritating so I would take paracetamol for it to disappear and amazingly again, the irritating pain that’s not really that painful would suddenly disappear in 10 minutes or less.

It’s really amazing, right? 

This AMAZING FEELING is not only about my head, it’s just a part of it. Amazing things keeps on happening to me and I feel so good! I never thought that there’s more to the “more than okay” that I used to feel month ago and I feel greater than “I feel so great!” 

So my birthday wish is for everyone to feel this AMAZING FEELING that I have because it’s really giving me a hard time thinking of words to describe it.

Saturday, May 06, 2017

Stepping up to show compassion by Tan Yi Liang

My story was featured by my awesome journalist friend (who keeps on refusing to believe that he's awesome...everyone that I call "my friend' is awesome, y'know). He is a Malaysian.

You can read this beautiful & inspiring article here: Stepping up to show compassion by Tan Yi Liang.

Since my book, KCAT CAN: I have a pen that writes was included in the article, let me promote it also. Haha.

You can buy the eBook version in pdf format for $10  and pay via PayPal.
BOOK.KCATYARZA.COM

You may also send me an email at kcatyarza@yahoo.com

Let's inspire each other!

Will the be a MAY BIRTHDAY PROJECT?

The answer is: NO



The 9th May Birthday Project (MBP) on 2015 was the last. There’s no MBP anymore but I really hope that I have instilled the joy of sharing and caring to everyone. It’s just me not organizing an event / outreach like this but the spirit of caring and sharing lives on. In those 9 years, I have proven that we don’t have to be a celebrity, politician or someone who’s rich and has a lot of money in order to do something like that. From something that was so small, together with my close friends & family, I was able to start it. I did it, I continue doing it and I surprisingly, it became bigger and better year after year, from 2007 to 2015..

YOU CAN
definitely do it too!

Monday, May 01, 2017

MAY IS NEUROFIBROMATOSIS AWARENESS MONTH


When we are aware about something, we start caring about that something and because of caring, great things can happen; small and big things.

I made an NF AWARENESS Twibbon that can be used by anyone and everyone – with and without NF. Use this and show your support. It may be a simple and trivial thing to do but this little thing bring us closer to greater things.

https://twibbon.com/Support/nf-awareness-month-2
Know all about NF and share the information to at least one person. In this way, we can make NF known and increase the possibility of finding a cure for it.

Be aware about NF and show everyone that you care.

Please visit our page:
NEUROFIBROMATOSIS FRIENDS (Philippines)

Monday, April 17, 2017

A beautiful miracle happened to me 11 years ago

April 17, 2006. Just like today, it was the Monday after Easter Sunday and that Monday from 11 years ago means so much to me.
It all started during Lenten Season in 2006. Everything dawn on me. I am so weak. I look very much different from a couple of months before. I am totally deaf. I can’t walk. I can’t chew and swallow properly. Etc. Etc. Etc. Etc. Etc. It felt like everything and everyone is moving with time and I was already left behind. I was sad. I had a hard time sleeping. It was an anxiety attack. It felt like I was already going to die because of my condition that time. I kept telling myself that’s It’s alright. 22 years (I was 22 years old then) is already enough.

But what really comforted me were all the bible verses and prayers that were posted on the wall beside my bed. I didn’t talk that much and the only One who I talk comfortably with was God. I’m just so used to talking to Him like how I talk with the people who are close to me. Since I don’t need to put much effort talking to Him and I won’t get tired. I don’t need to use any of my weak strength. All I had to do was think. Everything that I think about was passed on to Him so I don’t really keep everything to myself.

Holy Week 2006. I felt worse and worse and worse. I kept saying, “I’m going insane. I’m going insane.” I don’t understand what’s happening to me and to me, it really felt like going insane. That time, I just don’t understand. It was like an Angel versus Devil scenario in my mind. The one that we watch & read. The angel versus the devil. Yes, that was how it was. Crazy, right?


My mom kept reminding me to continue fighting and then placed a small silver crucifix on my hand and I never let go of it. I held it in my hand, in between my palm every time, any time and all the time.


My “I’m going insane. I’m going insane.” chant became “On Sunday. On Sunday.” I was looking forward to Easter Sunday. I was counting the days until Easter Sunday and I don’t know why, I just want it to be Easter Sunday already.

Easter Sunday finally arrived, nothing special happened to me. I still don’t know why I was excited for it to arrive. Still, I was happy. That’s all.

A very very very AMAZING thing happened the next day! I felt so good and while I was having my breakfast, I cheerfully told my mom that we’ll get better! “I will get better! You will get better!” and then my grandma came inside the house and I told her that she will get better too. With full of joy and excitement, I kept on saying “We will all get better!”

After a while, I told my mom, “Life must go on.” that I will give my best in everything. I can still do a lot of things despite my disabilities.

JESUS LIVES
and He brought my dying spirit back to life!



images from google



Tuesday, March 07, 2017

I aM POSSIBLE!

In 2008, I gave myself the best birthday gift from my hard-earned money. I was able to buy

Tuesday, February 14, 2017

February 14 is GALS Day!

Move over Valentine’s Day, today is GALS Day!!!

GALS is Graciano Altre Lopez Sr. He is the husband of Diding (Mang). He is the father of Vic, Jun, Belle, Miriam, Madge, Angie & Jim. He is the grandfather of Miguel Franco, Maria Kathrina, Jonathan Mark, Cristopher Jason, Ana Celina, Mark Anthony, Valerie Ann, Talitha Karisse, Viella Mae, Paul Michael, Paula Therese, Holy Ann, Janna Mariz, Allen David, Juan Mikhail +, Chrissie Ann, Patricia Nicole, Kiefer Jan, Maro Luiz, Jesper Ryan and Atom.

He died on February 14, 2000 due to heart ailment. We call him PAPA or Papa Lolo and everyone else called him Noning.

 Papa Noning is G.A.L.S. and it is not mere acronym of his name for us, but happiness, love and togetherness because that is what he shared and taught when he was still with us.

Almost all of my happy childhood memories were spent with my cousins from the maternal side, and all gratitude I give to our lolo Papa. “Basta bigyan niyo ako ng maraming apo,” those were Papa’s words as he blessed the weddings of all his children.

I remember having many overnight stays with my cousins at my grandparents’ house in Mandaluyong. Good thing our home is just a few blocks away but my cousins who live in Navotas, Muntinlupa, Makati, Pasig, and Cainta were all personally fetched by Papa. How fond of and loving he was to us.

During summer, the whole family traveled to Aloleng in Agno, Pangasinan to stay at our Papa and Mang’s vacation house. We frolicked in the beach, ran around the grassland, climbed up the tree house Papa made for us, picked mangoes and chicos, and made campfires.  Because of these bonding moments, my cousins and I have been like siblings who are really close to each other, up until now.

Papa was a survivor. He faced a lot of accidents, from minor accidents like falling down the ladder, to major ones like a vehicular accident, and serious burns from a fire accident; but he bravely overcame all these and continued on with his life. Now that I think about it, it was through Papa where I witnessed the real meaning of the quote “Life must go on”.



Sunday, February 12, 2017

YOU ARE LOVED

Love is a most potent force.  It does make our world go round.  It puts gladness into hearts, making them skip with joy and excitement.  In most countries around the world, and since time immemorial, a day is specially celebrated for love’s sake.


There are several stories that tell about the origin of Valentine’s Day.

There is one that tells of a Roman citizen who was martyred on February 14 for refusing to give up Christianity and for helping Christians escape the harsh Roman prisons.

Another person named Valentine left a farewell note for the jailer's daughter, who had become his friend, and signed it "From Your Valentine".

There is also a story that tells about St. Valentine, a priest who was jailed for defying Emperor Claudius who outlawed marriage for young men because the Emperor believed that single men made better soldiers that those with sweethearts, wives and families. St. Valentine saw it as an injustice and continued to perform marriages in secrecy.  He was beheaded on February 14, at around 270 AD.

The origins and history of why we celebrate the day of hearts on February 14 may differ; nevertheless, it puts emphasis on a common subject – LOVE.  And celebrating LOVE is precisely what Valentine’s Day is all about.

Giving love and celebrating love on Valentine’s Day is not limited only to the romance between two hearts (romantic love).

Not being in a romantic relationship does not mean one is loveless.

Love is everywhere.  Love is free.  It is a God-given blessing for us to give as well as to receive.

Sunday, December 25, 2016

Christmas Special

The last thing on my “to-do-list” this year was to make Christmas (and New Year) gift tags. Despite the migraine aura, I was able to accomplish it and I was all done in less than an hour that leaves me to do nothing but stare on my computer and surf the net. And then I suddenly had a light bulb moment.


I remembered the video that I saw on Facebook a few days ago. This Christmas, what will you choose? To receive something special or to give something to someone special? And I am choosing both.

I really had nothing worthwhile to do so I also made a gift tag for my friends I would see the name on my notifications. Those who liked or commented on my posts (Even though it’s not a bit related to the Christmas gift tag. Haha.) I also checked my friends list chose to include those familiar names. Yes, I was that bored. I was also determined. I really want to do this. I just want to. A couple of days ago, I have decided that if I want to do something and I can do it by myself, I will definitely push through with it and if it’s something that I need to depend much on other people, I will think about it first.

I wanted to make my friends feel special and this Christmas Project is very simple and with God’s help, I can do this by myself and it was a succes

My Christmas Project may be just mere images and a simple Christmas greetings but it has a lot of things in it. I didn’t use any app or generator for it and every photo that I made came with my effort, my sincerity, my love and my prayers. Of course, prayers are included because as we all know, Jesus is the reason for this season, right?



I feel so fulfilled once again because I have greeted 500+ persons a Merry Christmas and I did it one by one and I hope that I made them feel special in a way.
It was so amazing that I wasn’t a bit tired from doing it, in fact I feel so great because I did it and I was able to do all of it by myself in my own little way.

For the pepeople that I wasn’t able to give a gift tag to, I just wasn’t able to make you one. That’s all. YOU ARE STILL VERY VERY SPECIAL and Jesus was born for YOU.

Let’s make our friends and love ones feel special. It doesn’t need to be something big or something grand. We can do it in our own little and simple ways. Not only this Christmas but always.

 MERRY CHRISTMAS TO YOU





Monday, November 07, 2016

Scarhead

I was reminded of the word “scarface” and then I giggled and wrote this on my Facebook:


And then my Malaysian friend, YL shared with me something Keisha wrote about dealing with NF2 and surgery scars, this was from her last public speech before she passed away in 2014 and here it is:

"I have a genetic condition called NF2. Basically, tumors grow throughout my nervous system, and every time I have sought treatment, I come out of the operating room with a new scar - a souvenir to remind me of a hard-fought battle for survival.

I do not see reason to consider these scars a disfigurement of my body. Rather, I choose to see them a testament of how trials and adversity can unite the human spirit. Out of tragedy, my family, doctors, nurses, physiotherapists, caregivers and friends have united time and again to shine forth with the ultimate good within humankind. This is the story behind each and every scar on my body - of a unity of care and love turning tragedy into triumph.

In overcoming danger and earning the scars, I have found true strength, true character true faith and true love."

—Keisha Petrus (1989-2014)

Though I wasn’t able to meet Keisha when she was still alive, it's like I already did and I’m so inspired by her. Thanks to YL that I got to read her previous writings.

“My duels with NF2 have left me scarred, wheelchair bound and deaf! As bleak as that sounds, my life doesn’t revolve around the hospital. I have never let NF2 stop me from living my life. To the contrary, I have allowed my condition to provide me opportunities to broaden my horizons, challenge my faith and test my character. So instead of wallowing in self-pity, I embrace adversity to bring out the best in me and overcome the obstacles in my life. Thanks to my condition, I’ve been able to experience the world in a way few people get to see. The fragility of life inspires me to live to the fullest."
— Keisha Petrus (1989-2014)

It’s so amazing that we have the same outlook in life. WOW. WOW. WOW.



While I was about to write this blog post, YL commented on the status that I posted in Facebook with Keisha’s peice. 

Maybe, God eavesdropped on what I was thinking again and HE learned about the topic I’m planning to write & asked Keisha to whisper to YL for him to share that certain writing / speech that she wrote back in April 2014 that I posted above.

I also love this poem written by Keisha:

I Am Wearin' My Skin
Poem by Keisha Petrus

My message stands tall with pride and grace, 
My words in good time shall be like wind, 
Brace yourself dear friend, let the breeze propel you, 
Trust in my mission, and you will be free to live life’s embrace.

I once was swayed by aesthetic charm, 
Beautiful hair, beautiful eyes, beautiful body, 
I sweat, I sought, I fought, 
To no avail did I reach my Envy.

Lost a few pounds, strapped on my heels, 
No more laughter, no more tears.
But my heart knew better, I lacked content, 
I yearned, I cried, I prayed for something more than this.

My pleas were answered, my life put in perspective, 
Those blossoming belles bore nothing, 
Instead engrossed in hopeless insecurity, indeed highly defective, 
A hidden image behind a mirror, a roamer’s reflection.

Loving myself is more important than ridding my blemishes, 
As women come in many shapes and sizes.
I spend my time now in helping others, 
I am wearin’ my skin, no more empty and foolish disguises.

Related Posts Plugin for WordPress, Blogger...