I stumbled upon this from my Facebook wall:
My name is Johanna Tejada-Medalla and I am a mother of two young boys and daughter named Jorge Rafael, Julian Hanns and Janine Marie Victoria. We are living in my parent’s house at 40 Kennedy Drive Tandang Sora Quezon City 1116, Philippines.
I wrote this letter to ask for your support to our only daughter Janine Marie Victoria. My daughter Janine was born with a life threatening disease called “Biliary Atresia” . It is a congenital condition characterize by the absence or closure of the bile ducts that drain bile from the liver. Biliary Atresia is a progressive inflammatory process that begins very soon after birth. In Janine’s case, she was diagnosed initially with Neonatal Hepatitis at 2 1/2 months and after two weeks of medication nothing changes with her color and stool that make her paediatrician decided to have another biopsy, eventually it turned out to be Biliary Atresia. During that time, there was already a significant amount of damage to her liver. White blood cells invaded the ducts, which became damaged or closed completely, bile was then trapped inside the liver and rapidly caused liver cirrhosis.
An operation called “KASAI Method” was done on Janine by Dra. Esther Saguil at the Philippine General Hospital last April 14, 2009. It is an operation that removes the damaged biliary ducts ouside the liver. Then, the small intestine is directly attached to the liver at the spot where bile is found or expected to drain. This procedure is not a cure but rather a temporary solution to be able to give Janine more time to find the necessary funding for her operation and the matching liver type.
Unfortunately, although the operation was done, her liver continued to fail. Our doctors told us that there is no other course but to have a liver transplant. Unfortunately, liver transplant is not yet available locally but it can be done in Taiwan for P3 Million pesos (approx. $60,000 USD). This amount is simply beyond the means of our family. If my daughter will not be able to have a liver transplant soon, she will die. All we want is to see our daughter live that’s why we are appealing for you charity and compassion.
We are entrusting Janine to God’s hand and we believe that He will deliver Janine from this ordeal, through your help and prayers. Thank you for your time in reading my letter and we are hoping for your kind help. God Bless.
You could read Baby Janine's story (http://www.caringbridge.org/visit/janineliver4life/mystory) and if you have a Facebook account, join her Facebook Group page.